Gifts, Graces, and Griefs: Giving Voice to All the Songs Reflections on the Life of Sarah Steele

Sarah Steele was a young woman who lived her whole life with a rare disabling condition, fibrodysplasia ossificans progressiva (FOP), and in a family that include religion professor, clergy woman, and two siblings. Her death in 2017 and subsequent memorial service drew together multiple communities...

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Bibliographic Details
Authors: Gaventa, William C. (Author) ; Hair, Marilyn (Author) ; Steele, Jonathan (Author) ; Steele, Mary E. (Author)
Corporate Author: National Collaborative on Faith and Disability (Author)
Contributors: Steele, Richard B. (Contributor)
Format: Electronic Article
Language:English
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Published: Taylor & Francis 2021
In: Journal of disability & religion
Year: 2021, Volume: 25, Issue: 2, Pages: 191-208
Further subjects:B Disability
B Flourishing
B Family
B Death
B Faith
B Identity
B fibrodysplasia ossificans progressiva (FOP)
Online Access: Volltext (lizenzpflichtig)
Description
Summary:Sarah Steele was a young woman who lived her whole life with a rare disabling condition, fibrodysplasia ossificans progressiva (FOP), and in a family that include religion professor, clergy woman, and two siblings. Her death in 2017 and subsequent memorial service drew together multiple communities with whom she had been involved, and included reflections by her father, mother, and two siblings. Her father, Richard Steele, and her mother, Marilyn Hair, had both written and published other essays about their journey with Sarah in the Journal of Disability and in others. Bill Gaventa, with the permission and help of the family, summarizes some of the human and theological dimensions of their journey.
ISSN:2331-253X
Contains:Enthalten in: Journal of disability & religion
Persistent identifiers:DOI: 10.1080/23312521.2020.1743223