The Human Connection: A Case Study of Spirituality and Disability

This paper utilizes a case study of a woman in the final stage of Frederick's Ataxia, who, together with her carer, participated in an interview just days before she died. As a consequence of impairment associated with the later stage of the disease, the participant's verbal communication...

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Bibliographic Details
Authors: MacGrath, Pam (Author) ; Newell, Christopher 1964-2008 (Author)
Format: Electronic Article
Language:English
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Published: Routledge 2004
In: Journal of religion, disability & health
Year: 2004, Volume: 8, Issue: 1/2, Pages: 89-103
Further subjects:B Disability
B Spirituality
B Chronic Illness
B Palliative Care
Online Access: Volltext (lizenzpflichtig)
Description
Summary:This paper utilizes a case study of a woman in the final stage of Frederick's Ataxia, who, together with her carer, participated in an interview just days before she died. As a consequence of impairment associated with the later stage of the disease, the participant's verbal communication was limited. There are various ways in which individuals who are confronting the end of life experience spirituality. For this woman, spirituality was expressed as a connection with significant others, rather than as religiosity. Key findings are expressed in terms of the importance of insights offered by people with non-verbal communication, spirituality rather than religiousness, and the importance of domiciliary palliative care. The most important gift that pastoral carers, and carers in general, have to offer is the gift of relationship.
ISSN:1522-9122
Contains:Enthalten in: Journal of religion, disability & health
Persistent identifiers:DOI: 10.1300/J095v08n01_07