A Holy Mess of a Story: Maternal Reflections on Caregiving, Chaos, and Intellectual Disability

Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experien...

Ausführliche Beschreibung

Gespeichert in:  
Bibliographische Detailangaben
1. VerfasserIn: Macgregor, Laura (VerfasserIn)
Medienart: Elektronisch Aufsatz
Sprache:Englisch
Verfügbarkeit prüfen: HBZ Gateway
Journals Online & Print:
Lade...
Fernleihe:Fernleihe für die Fachinformationsdienste
Veröffentlicht: Taylor & Francis 2023
In: Journal of disability & religion
Jahr: 2023, Band: 27, Heft: 1, Seiten: 124-137
weitere Schlagwörter:B parent
B Suffering
B L’Arche
B intellectual disability
Online Zugang: Volltext (lizenzpflichtig)
Beschreibung
Zusammenfassung:Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experiences of mothers caring for children with intellectual disabilities, particularly among faith communities. Rather than a journey of spiritual growth, research indicates that the lives of mothers often resemble a chaos narrative of spiritual confusion, paradoxically fused with joy. Providing effective spiritual care requires that faith communities honor anti-narratives of caregiving chaos.
ISSN:2331-253X
Enthält:Enthalten in: Journal of disability & religion
Persistent identifiers:DOI: 10.1080/23312521.2021.1932688