A Holy Mess of a Story: Maternal Reflections on Caregiving, Chaos, and Intellectual Disability
Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experien...
Main Author: | |
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Format: | Electronic Article |
Language: | English |
Check availability: | HBZ Gateway |
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Fernleihe: | Fernleihe für die Fachinformationsdienste |
Published: |
Taylor & Francis
2023
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In: |
Journal of disability & religion
Year: 2023, Volume: 27, Issue: 1, Pages: 124-137 |
Further subjects: | B
parent
B Suffering B L’Arche B intellectual disability |
Online Access: |
Volltext (lizenzpflichtig) |
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520 | |a Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experiences of mothers caring for children with intellectual disabilities, particularly among faith communities. Rather than a journey of spiritual growth, research indicates that the lives of mothers often resemble a chaos narrative of spiritual confusion, paradoxically fused with joy. Providing effective spiritual care requires that faith communities honor anti-narratives of caregiving chaos. | ||
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