Against Harmful Research on Non-Agreeing Children
The Code of Federal Regulations permits harmful research on children who have not agreed to participate, but I will argue that it should be no more permissive of harmful research on such children than of harmful research on adults who have not agreed to participate. Of course, the Code permits harmf...
Auteur principal: | |
---|---|
Collaborateurs: | |
Type de support: | Électronique Article |
Langue: | Anglais |
Vérifier la disponibilité: | HBZ Gateway |
Journals Online & Print: | |
Fernleihe: | Fernleihe für die Fachinformationsdienste |
Publié: |
Wiley-Blackwell
[2015]
|
Dans: |
Bioethics
Année: 2015, Volume: 29, Numéro: 6, Pages: 431-439 |
RelBib Classification: | NCJ Science et éthique XA Droit ZC Politique en général |
Sujets non-standardisés: | B
pediatric research
B Ethics B Harm B Bioethics B code of federal regulations B research ethics B Assent |
Accès en ligne: |
Volltext (Verlag) Volltext (doi) |
MARC
LEADER | 00000caa a22000002 4500 | ||
---|---|---|---|
001 | 1727699165 | ||
003 | DE-627 | ||
005 | 20220104101434.0 | ||
007 | cr uuu---uuuuu | ||
008 | 200824s2015 xx |||||o 00| ||eng c | ||
024 | 7 | |a 10.1111/bioe.12117 |2 doi | |
035 | |a (DE-627)1727699165 | ||
035 | |a (DE-599)KXP1727699165 | ||
040 | |a DE-627 |b ger |c DE-627 |e rda | ||
041 | |a eng | ||
084 | |a 1 |2 ssgn | ||
100 | 1 | |a Chwang, Eric |e VerfasserIn |4 aut | |
245 | 1 | 0 | |a Against Harmful Research on Non-Agreeing Children |
264 | 1 | |c [2015] | |
336 | |a Text |b txt |2 rdacontent | ||
337 | |a Computermedien |b c |2 rdamedia | ||
338 | |a Online-Ressource |b cr |2 rdacarrier | ||
520 | |a The Code of Federal Regulations permits harmful research on children who have not agreed to participate, but I will argue that it should be no more permissive of harmful research on such children than of harmful research on adults who have not agreed to participate. Of course, the Code permits harmful research on adults. Such research is not morally problematic, however, because adults must agree to participate. And, of course, the Code also permits beneficial research on children without needing their explicit agreement. This sort of research is also not problematic, this time because paternalism towards children may be justifiable. The moral problem at the center of this paper arises from the combination of two potential properties of pediatric research, first that it might be harmful and second that its subjects might not agree to participate. In Section 2 of this article I explain how the Code permits harmful research on non-agreeing children. Section 3 contains my argument that we should no more permit harmful research on non-agreeing children than on non-agreeing adults. In Section 4, I argue that my thesis does not presuppose that pediatric assent has the same moral force that adult consent does. In Section 5, I argue that the distinction between non-voluntary and involuntary research is irrelevant to my thesis. In Section 6, I rebut an objection based on the power of parental permission. In Section 7 I suggest how the Code of Federal Regulations might be changed. | ||
650 | 4 | |a Assent | |
650 | 4 | |a Bioethics | |
650 | 4 | |a code of federal regulations | |
650 | 4 | |a Ethics | |
650 | 4 | |a Harm | |
650 | 4 | |a pediatric research | |
650 | 4 | |a research ethics | |
652 | |a NCJ:XA:ZC | ||
700 | 1 | |a Wright, Katharine |e VerfasserIn des Bezugswerks |4 ant | |
773 | 0 | 8 | |i Enthalten in |t Bioethics |d Oxford [u.a.] : Wiley-Blackwell, 1987 |g 29(2015), 6, Seite 431-439 |h Online-Ressource |w (DE-627)271596708 |w (DE-600)1480658-7 |w (DE-576)078707986 |x 1467-8519 |7 nnns |
773 | 1 | 8 | |g volume:29 |g year:2015 |g number:6 |g pages:431-439 |
787 | 0 | 8 | |i Kritik in |a Wright, Katharine |t Children and Clinical Research |d 2016 |w (DE-627)1727692349 |
856 | 4 | 0 | |u https://onlinelibrary.wiley.com/doi/abs/10.1111/bioe.12117 |x Verlag |
856 | |u https://doi.org/10.1111/bioe.12117 |x doi |3 Volltext | ||
936 | u | w | |d 29 |j 2015 |e 6 |h 431-439 |
951 | |a AR | ||
ELC | |a 1 | ||
ITA | |a 1 |t 1 | ||
LOK | |0 000 xxxxxcx a22 zn 4500 | ||
LOK | |0 001 3742396420 | ||
LOK | |0 003 DE-627 | ||
LOK | |0 004 1727699165 | ||
LOK | |0 005 20220104090940 | ||
LOK | |0 008 200824||||||||||||||||ger||||||| | ||
LOK | |0 040 |a DE-Tue135 |c DE-627 |d DE-Tue135 | ||
LOK | |0 092 |o n | ||
LOK | |0 852 |a DE-Tue135 | ||
LOK | |0 852 1 |9 00 | ||
LOK | |0 935 |a ixzs |a ixzo | ||
LOK | |0 936ln |0 1550736582 |a NCJ | ||
LOK | |0 936ln |0 1550736965 |a ZC | ||
LOK | |0 936ln |0 1442053798 |a XA | ||
ORI | |a SA-MARC-ixtheoa001.raw | ||
REL | |a 1 | ||
SUB | |a REL |