What can we Learn from Patients’ Ethical Thinking about the right ‘not to know’ in Genomics? Lessons from Cancer Genetic Testing for Genetic Counselling

This article is based on a qualitative empirical project about a distinct kinship group who were among the first identified internationally as having a genetic susceptibility to cancer (Lynch Syndrome). 50 were invited to participate (42 were tested; eight declined genetic testing). 15, who had all...

Ausführliche Beschreibung

Gespeichert in:  
Bibliographische Detailangaben
1. VerfasserIn: Cowley, Lorraine (VerfasserIn)
Medienart: Elektronisch Aufsatz
Sprache:Englisch
Verfügbarkeit prüfen: HBZ Gateway
Journals Online & Print:
Lade...
Fernleihe:Fernleihe für die Fachinformationsdienste
Veröffentlicht: Wiley-Blackwell [2016]
In: Bioethics
Jahr: 2016, Band: 30, Heft: 8, Seiten: 628-635
RelBib Classification:NCH Medizinische Ethik
ZB Soziologie
weitere Schlagwörter:B Ethics
B genetic counselling
B cancer susceptibility
B genetic test decliners
B Moral Identity
B right not to know
B social implications
Online Zugang: Volltext (Verlag)
Volltext (doi)